What's going on...

It's been a little while since our last update so let's see what has happened...well, May did the MRI after her chemo & the results came back that she has Chiari Malformation. Chiari Malformation is (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. There are three different types of CMs, but the doctors aren't sure what type May has until they get the results from the MRI of her neck. Please keep your fingers crossed that it is a Type I CMs.

 

Jenn & I took Maylene & her friend Naeemah to York Beach, ME to have a nice little weekend away from everything. The weather was beautiful & beach was nice. We had so much fun & it was definitely much needed.

 

This past weekend was a rough one, May wasn't feeling good & the time came to finally shave her head in preparation for the hair loss. She is one tough cookie!  Her white blood cell count was low last week, which means she is more susceptible to infections/colds. She went for her weekly blood test yesterday, hopefully her blood counts are good because she is suppose to start her second round of chemo later this week, but if the blood levels are still low they will have to push the chemo back till they are at a good level. 

 

We leave tonight to go to Boston to be able to meet the surgeon from Dana Farber, which is just protocall & then we finally get to meet Dr. Frazier. Hopefully, the visit will go well & we will learn some more stuff about May's cancer.

 

Finally, the tickets for May's fundraiser that is coming up in October will be available for sale this week. Check out the fundraiser tab to see how you can get your tickets. We look forward to seeing you there!!

Chemo has begun, but Maylene is doing well.

Maylene spent her Labor Day weekend in the hospital getting her first round of chemo. She is only getting two of three drugs they said that she would receive due to one of the breathing tests coming in low. She will have to retake the breathing test to see if her DCLO levels come in higher and at that point Dr. Richardson and Dr. Frazier will decide whether or not to start the third chemo drug or continue with the two. 

Maylene did an awesome job this past weekend, but she was definitely ready to go home by the end of it. She is home resting now, and her appetite is starting to come back little by little.  Chemo makes everything taste metallically.

She was able to see her little brother, Greg, dressed up for his first day of Kindergarten, but unfortunately she wasn't feeling well enough to go see him off to his first day of class. Hopefully, tomorrow she will be able to take him to school.

Also, a bit more good news!  Before May's surgery, her Alpha Beta Protein (ABP a.k.a. cancer cells) level were over 3,000. After the surgery her ABP level went down to 1,100, and right before she started chemo this weekend her ABP level was 250.

Please keep the prayers coming because they are doing wonders. Thank you all for the continue love & support!!